Showing posts with label CDH Family. Show all posts
Showing posts with label CDH Family. Show all posts

change isn't always easy

There have been a few of changes happening in our life. All been good changes for the most part. The biggest change of all is a couple of months ago Eric (my amazing husband. love you babe.) was offered the perfect job. We felt a huge sigh of relief. After fourteen months of being on the unemployment train we were thankful to finally be getting off. The stress of having a family, being unemployed and having to deal with Owain's latest,longest and hopefully his last surgery(Cross our fingers).We were so thankfully that finally our prayers were answered and hubs found a job in graphic design. Something he has been trying to get into since he graduated with a Bachelor in Fine Arts five years ago.Hasn't been easy since every place wants you to have two plus years experience. Kinda hard to do fresh out of college.Not to mention the economy isn't all that great. Just about every job hubs applied for their were two hundred other applicants gunning for the position.

He was a print specialist before they laid him and a handful of other employees. It was the kinda job that  was alright it paid the bills.He didn't love it and defiantly couldn't see himself growing with the company. So when they laid him off fourteen months ago we felt it was a blessing in disguise. No one really wants to be put in that situation jobless with a family to feed and medical bills to pay.Not to mention all the other bills that come along with being a grown up. Us trying to have a positive out look  we saw this as an opportunity for him to move forward and find a job in graphic design. A job were he could be creative. A job were he would look forward to going to everyday. A job with full benefits.A company were he can grow with in that very company. After fourteen months on the unemployment train that perfect job found hubs or hubs found it. Either way everything always works out eventually. Sometime you just have to be patient and work hard so another door can open.

The only draw back is we had to relocate. The commute would be to much for hubs. The timing couldn't be more perfect our lease was ending.Everything was falling right into place. It's amazing how it all kinda works out that way.We quickly found another apartment  to rent. Were going on our third week in our new apartment home. I am hardly in love with it.I don't hate it but am defiantly not in love. The area well it's okay. I miss being on the other side of the river. I miss all my wonderful mommy friends and Owain's little buddies. It's taking some time to get use to our new little town outside of Portland just on the other side of the river. I am not  in love with our new neighborhood or town for that matter but our apartment home is starting  to feel like home.Now that all but one box is unpacked and pictures are hung.

 The best part of our move is why we moved. Hubs's  career. He loves it. It's totally worth the big change. Even though change isn't always easy. It's totally worth it to see hubs happy. Loving his new job. Being able to use his creativity on a daily basis and get paid for it. It's perfect for him Perfect  for us.


aren't the two men in my life stink'in cute?

a success

My dad's surgery was a success. There is even talk of maybe him being able to go home tomorrow! Thank you for keeping my dad in your thoughts and prayers.While in my home town of Eugene We visited with Aunts,Uncles,grandma's,grandpa's,friends from high school.Ate way to much fast food.Skipped my morning shower.Saw the most beautiful rainbow.Gave lots of hugs. Received lots of hugs.Just for fun rode every single elevator in the hospital a bazillion times.Picked up my step mom's  old broken down computer so my computer savvy husband can bring it back to life again.Ate at our favorite Mexican restaurant Burrito Boy.Their chicken tacos are the bomb. Got a little freaked out by my friend's daughter baby alive doll. Watched our little man play with his big cousin Isaiah (his five).Melt my heart. Had a restful night of sleep.Drove a little over 200 miles.Took a cat nap on the drive home. No need to worry my husband is the driver in our family. It sure feels good to be home and know my dad is in recovery nicely. Only time will tell if this surgery will be the answer to the chronic back pain he has lived with most of his life.I'm tired it's time to call it a night, Good night.Thanks for listening.

Heaven gets another Angel


After eight days battling CDH Baby Ryann earned her angel wings this afternoon, shortly after 3:00. Please keep her parents David Jaime,and big sister Reggan and their families in your thoughts and prayers in this difficult time.

Thank You




Ryann needs our prayers!

Ryann Smith was born December 27 and she is currently on ECMO. Please keep her and her family in your prayers during this very difficult time.Read more about Ryann's battle with CDH here.

Were praying for you Ryann!!

Please Continue to Pray for Our little CDH Warriors!

Baby Alina was born December 2o she has already had her repair surgery and just graduated to CPAP. Way to go Alina! Please continue to keep Alina and her parents Alex and Ingrid in your prayers as Alina continues to in battle against CDH.

As of today baby Olivia is one month and six days old and she is having a difficult time. Her CDH roller coaster ride continues to be a bumpy one. Please keep her,twin brother Mason and her parents Jacy and Doug in your prayers. She is in the best care with Dr.Kays as her Doctor.He is well known for treating babies born with CDH.Some of his other patients that I know of through the blogging world) are Ella and Par Please pray that Olivia has some really good and stable days. Especially since Dr.Kays will be on vacation for ten days. Lets just all pray that the next few days are really boring. Parents with babies in the NICU love all the boring days we can get!

I have been following baby Carter's journey well since he was in his mommy's womb. He is well over two months old and is making great progress. Right now he is just working on drinking from a bottle then he will get to go home with his mommy (kelly) and daddy (Brad)! This is very exciting for the Myers. Make sure you check out their blog they just posted a cute video of baby Carter playing a new game with his mommy. It so so cute!!!It literally brought tears to my eyes. What a priceless moment I am sure Brad and Kelly will treasure!

Keep Sophie Miller in your prayers!

Sophie is in surgery as I type this. She re herniated for a second time. Please pray for her,her surgeons and her wonderful parents. If you get a chance wish her daddy Kenny a happy birthday!

It's crazy in six days we will be in the same position as the Miller's and it will be Owain's daddy birthday too. What a way to spend a birthday.

Update on our CDH warrior's

Please keep Catherine and her family in your thoughts and prayers. Today is a big day for her she is having surgery to put in a trach. Hopefully this is what her little heart and lungs need to give her body a rest.

Baby Carter had his repair surgery this past Thursday. He is still on the ventilator but it sounds like he is headed in the right direction. Please keep him and his family in your prayers too as he still as a long way to go in his recovery.

Nayeli
is doing great! She just moved from the level three Nicu to the transition Nicu. That means she is getting closer to be going home with her mommy and daddy!Woohoo!

Lizzyjo had her repair surgery on the 9th of November. She is recovering quite nicely. Pray that she will continue on the right road to recovery.

Welcome to the world Sydney!Sydney started her fight against CDH three days ago. Stay strong Sydney you can beat CDH's booty!

Please keep the Kostjuk family in your thoughts and prayers as well they are going through a very difficult time their sweet little girl Reese lost her fight against CDH on her first birthday.Breathe easy Reese.
Ava is slowly recovering from her re herniated surgery a little over a month ago. She is headed in the right direction. check out her blog her mom Terri posted some darling pictures of Ava smiling. From looking at the picture she looks like she is feeling better.

I remember a little over a year ago when I first was learning of this devastating birth defect CDH. It was the first I have ever heard of this birth defect. I didn't know one person or child born with CDH. None of my family,friends,co-workers have ever heard of it either.Now that I am aware of CDH I am meeting new families that are expecting a child who will be born with CDH. CDH is way more common than I ever imagined .

When Owain was born I learned how powerful the power of prayer and positive energy can really help. I honestly believe with out our friends,families and strangers giving us support. Praying for our little man. Believing in him. They are what gave us strength to be strong for Owain. I will always be incredible thankful to everyone who had a part in Owain's recovery.

Whether you made us home cooked meals,gave me rides to or from the hospital,let us cry on your shoulder. or simply Leave a comment it all meant the world to us.Thank You!

Please keep all of these amazing families and their little warrior's on your prayer list!

Big day for Nayeli! Please keep her in your prayers!

Warrior Princess Nayeli is going strong with her fight against CDH. She is doing so good that she is schedule to have her repair surgery between 1-2 today. That is fantastic! After surgery the first three days will be the most critical. Please pray for her that she will continue do go strong and recover with out to many bumps along this crazy CDH roller coaster ride.

Thank You

Happy Bitrthday Angel Skyla!

This post is a little late. I misplaced place my cord to my camera(maybe I should get a little organized). So I was unable to download these pictures.Sorry for the lateness.


October 13,2007 is a very special day. Skyla Manawa Temaipi was born and began her fight against CDH (Congital Diaphragmatic Hernia). Skyla is one of the toughest little girls I have had the honor of knowing her story. For her birthday we joined in with her family and friends and released pink and white balloons to celebrate her life. She may have only been an angel on Earth for eight months before she earned her angel wings but in those eight months she has touched so many people. Happy birthday Skyla!



Today Wyatt turns one!

Happy First Birthday Wyatt!

You have come along way buddy.
You are the definition of a true warrior.
Happy first birthday!

If you would like to read Wyatt's amazing story battling CDH and beating the odds check out his blog.