Did you wear turquoise today in honor of all of our CDH warriors?
We broke out the turquoise for CDH day which happens to be today.
I thought I was a little more prepared for today. I swear Owain owned a turquoise shirt.
This is all I could find....
Our little Picaso did make a new work of art with some help from mommy. As soon can see there is a lot of turquoise in honor of all of our CDH warriors.
Help spread awareness!
Wear Turquoise!
Educated someone about CDH!
I thought I was a little more prepared for today. I swear Owain owned a turquoise shirt.
This is all I could find....
Why is CDH Awareness important?
Have you ever heard of Cystic Fibrosis? How about Spina Bifida? What about CDH? Most people have heard of CF and Spina Bifida, but have never heard of CDH until their own child or the child of a friend or family member is diagnosed. Yet, CDH occurs just as often, and often times is fatal.
The median age of survival with CF has doubled in the last 25 years. Just in the last 20 years, individuals with Spina Bifida are living fuller, longer and more productives lives than ever thought possible and now have a near normal life expectancy. Why is this? Research, education, and medical advances make this kind of progress possible.
CDH first appeared in medical literature in the early 18th century. The first successful surgical treatment was in 1902. Now, more than 100 years later, the survival rate remains a dismal 50-60%.
CDH awareness leads to education about this horrible defect. Education leads to more research. More research leads to better treatments and ultimately to prevention. Help prevent CDH by spreading awareness!
Have you ever heard of Cystic Fibrosis? How about Spina Bifida? What about CDH? Most people have heard of CF and Spina Bifida, but have never heard of CDH until their own child or the child of a friend or family member is diagnosed. Yet, CDH occurs just as often, and often times is fatal.
The median age of survival with CF has doubled in the last 25 years. Just in the last 20 years, individuals with Spina Bifida are living fuller, longer and more productives lives than ever thought possible and now have a near normal life expectancy. Why is this? Research, education, and medical advances make this kind of progress possible.
CDH first appeared in medical literature in the early 18th century. The first successful surgical treatment was in 1902. Now, more than 100 years later, the survival rate remains a dismal 50-60%.
CDH awareness leads to education about this horrible defect. Education leads to more research. More research leads to better treatments and ultimately to prevention. Help prevent CDH by spreading awareness!
Some statistics from Sofie's CDH InfoSpot...
- CDH occurs in approximately 1 in every 2,500 live births.
- This means about 1,600 babies are born each year with CDH.
- Approximately 50% of all babies diagnosed with CDH do not survive.
- After having a baby with isolated CDH the chance of having another child with CDH is 1-2%.
Our little Picaso did make a new work of art with some help from mommy. As soon can see there is a lot of turquoise in honor of all of our CDH warriors.Help spread awareness!
Wear Turquoise!
Educated someone about CDH!
