Update: CDH Warriors
Our little CDH warriors are need of prayers!
Please join me in the power of prayer!
And pray for each one of these amazing babies and there families.
Believe. Believe. Believe.
In the power of prayer!
Happy Birthday Jaime!
Today little warrior Jaime was born and began his battle with CDH. He is stable and resting up for battle. Check out his blog and see some beautiful pictures of little Jaime and a special birthday picture for Jaime from his big brother Jared (nice work Jared ;-). It will melt your heart. I promise!
Keep fighting Jaime!
You can beat CDH!
Yes you can!
Ruby Hope was placed on ECMO(lung heart bypass machine) three days ago. She has had a pretty boring day(we like boring:-)Pray that Ruby will be able to rest up so her heart and lungs will be strong enough to come off ECMO and have her repair surgery.
Keep fighting Ruby!
You can beat CDH!
Yes you can!
Kaden Alex Kuel began his fight against CDH April 3,2009 his CDH roller coaster ride has been a bumpy one (very typical). As of today he his moving in the right direction so he can move on to the next battle field and have his repair surgery.
Keep fighting Kaden!
You can beat CDH!
Yes you can!
Charlie also known as Gumdrop has been in the NICU going on seventy-one days. The only thing that is keeping him from going home is bottle/breast feeding. This part can be very frustrating. Something simple like eating, can take weeks sometimes months for it to click.
It will click,Charlie!
You can do this!
Yes you can!
Sophia Miller I feel like I know her and her parent's Kenny and Jen I have been following Sophia's CDH journey for a little over year and praying for her. For the third time Sophia re herniated. She is waiting in the hospital for her third repair. Pray that this will be final!
We all know you can do this!
You have been there done that!
Your Super Sophie!
Yes you can!
Wyatt is another CDH warrior I feel close too. There is a possibility that he has re herniated for a third time.They are waiting for next week to run some more test (MRI and CT scan) to be 100% sure. Please pray that if he does have to have yet another surgery that this will be final!
Please keep these next families in your prayers.
They are preparing for battle for there little warriors.
Shawn,Stephanie and big sister Hollie are preparing for Kamryn's battle with CDH. Kamryn and her twin sister are due in June.
There CDH journey reminds me of another set of twins Olivia and Mason who recently have traveled the roads Kamryn and Brooke are about to embark on.
Kamryn you can beat CDH!
Yes you Can!
The Keirsey's are waiting for Avery Mae's arrival which is just around the corner May 15. They are preparing for the long road a head of them. Avery not only is going up for battle against CDH but she also has a heart defect.Please pray for Avery and her family.
Avery you can beat CDH!
Yes you can!
I remember the first meeting we had with Owain's surgeon. I was a little over twenty weeks pregnant and we were just learning what CDH is? One of the things he said"one out of three babies born with CDH will DIE."
Every time a baby born with CDH earns there wings it breaks my heart. My heart aches for each and every single one of them and there families. There is not a single day that goes by that I don't think about all the little CDH angels watching from above.
Joseph Carter Dejohn
February 3,2009-February 26,2009
Virgina Addison Accord
February 16,2009-March 11,2009
Maxton David Standifer
March 3,2009-March 21,2009
Ava Rose Daher
April 13,2009-April 13,2009
Thank You for taking a moment out of your day
to pray for our little CDH Warriors and there families.
Please join me in the power of prayer!
And pray for each one of these amazing babies and there families.
Believe. Believe. Believe.
In the power of prayer!
Happy Birthday Jaime!
Today little warrior Jaime was born and began his battle with CDH. He is stable and resting up for battle. Check out his blog and see some beautiful pictures of little Jaime and a special birthday picture for Jaime from his big brother Jared (nice work Jared ;-). It will melt your heart. I promise!
Keep fighting Jaime!
You can beat CDH!
Yes you can!
Ruby Hope was placed on ECMO(lung heart bypass machine) three days ago. She has had a pretty boring day(we like boring:-)Pray that Ruby will be able to rest up so her heart and lungs will be strong enough to come off ECMO and have her repair surgery.
Keep fighting Ruby!
You can beat CDH!
Yes you can!
Kaden Alex Kuel began his fight against CDH April 3,2009 his CDH roller coaster ride has been a bumpy one (very typical). As of today he his moving in the right direction so he can move on to the next battle field and have his repair surgery.
Keep fighting Kaden!
You can beat CDH!
Yes you can!
Charlie also known as Gumdrop has been in the NICU going on seventy-one days. The only thing that is keeping him from going home is bottle/breast feeding. This part can be very frustrating. Something simple like eating, can take weeks sometimes months for it to click.
It will click,Charlie!
You can do this!
Yes you can!
Sophia Miller I feel like I know her and her parent's Kenny and Jen I have been following Sophia's CDH journey for a little over year and praying for her. For the third time Sophia re herniated. She is waiting in the hospital for her third repair. Pray that this will be final!
We all know you can do this!
You have been there done that!
Your Super Sophie!
Yes you can!
Wyatt is another CDH warrior I feel close too. There is a possibility that he has re herniated for a third time.They are waiting for next week to run some more test (MRI and CT scan) to be 100% sure. Please pray that if he does have to have yet another surgery that this will be final!
Please keep these next families in your prayers.
They are preparing for battle for there little warriors.
Shawn,Stephanie and big sister Hollie are preparing for Kamryn's battle with CDH. Kamryn and her twin sister are due in June.
There CDH journey reminds me of another set of twins Olivia and Mason who recently have traveled the roads Kamryn and Brooke are about to embark on.
Kamryn you can beat CDH!
Yes you Can!
The Keirsey's are waiting for Avery Mae's arrival which is just around the corner May 15. They are preparing for the long road a head of them. Avery not only is going up for battle against CDH but she also has a heart defect.Please pray for Avery and her family.
Avery you can beat CDH!
Yes you can!
I remember the first meeting we had with Owain's surgeon. I was a little over twenty weeks pregnant and we were just learning what CDH is? One of the things he said"one out of three babies born with CDH will DIE."
Every time a baby born with CDH earns there wings it breaks my heart. My heart aches for each and every single one of them and there families. There is not a single day that goes by that I don't think about all the little CDH angels watching from above.
Joseph Carter Dejohn
February 3,2009-February 26,2009
Virgina Addison Accord
February 16,2009-March 11,2009
Maxton David Standifer
March 3,2009-March 21,2009
Ava Rose Daher
April 13,2009-April 13,2009
Thank You for taking a moment out of your day
to pray for our little CDH Warriors and there families.
Amber,
I love that you do these updates! I know it means a lot to the families too:)
darcy