Our family's journey through life

Owain's first star sighting

by Amber

"I see something it is big,fluffy and white"

"And it's coming my way!"

"look over there!"

"it's the Easter Bunny!"

"he is so cool"

"hey Easter Bunny can I have your autograph?"

Spring break Owain and I went on a little trip to Washington to visit family leaving daddy to fend for himself. We had a really nice visit. Beside Great Grandma and Grandma Outrageous the rest of the family hasn't seen Owain since last June. Boy oh boy has he changed!

Hanging out with Great Uncle Andy

Being Cheesy with Great Aunt Joyce and Cousin Kristen

Playing the big Piano

Great Grandpa Jones and MR.Smiles :-)

Walking to lunch with Great Grandma and Grandma Outrageous

Pickle for lunch...MMMmmm

Kisses for Great Grandma

Level 3 at Legacy Emmanual

by Amber

Level 3 at Legacy Emmanual

About a month ago I came across this series of articles on my friend Darcy's blog. Her son Owen was born with RCDH and was born at Legacy and spent a month in the NICU a year before our little Owain would begin his fight at the very same hospital.

This series was published in 2003, before our boys was even thought of, before we even knew what CDH was or that babies get sick and sometimes die.

This is an amazing series, I urge you to read it. I am posting about it here in particular because I know some of you who read this also had a CDH baby at Legacy and would love to read more about this amazing place and the fantastic nurses who work there. Also, some of you have or are expecting a CDH babe, this gave me quite a good (if intense) view of what goes on in a Level 3 unit from the nurses perspective.

The series: Fighting for life on Level 3

On the above page there are also links to some related stories as well as a photo gallery that goes with each article.

So when you have a moment, grab a box of tissues and get a little glimpse of this little world that we were a part of while and will never forget.

Dacy thank you for sharing these articles I found them to be very interesting and boy did they bring back a lot of memories. I also new that it takes a special someone to be a NICU nurse and these articles really bring it into perspective.

A+++

by Amber

Last Tuesday Owain had his final Physical Therapy appointment. Since he was two months old we have been taking him to Physical Therapy about every three to four months. We have been pretty blessed with his progress.Each time his Physical therapist was very pleased with his progress. This time she was very impressed. Owain WOWED her!

His fine motor skills:
Grasp are at a 15-19 month level
Visual/spatial: 16 month level

Gross Motor:
Balance: 14-17 month level
Locomotion: 15 month level

I am one proud momma! With every thing he has endured it has not slowed him down. We are very blessed and thankful each and every day for our little man. He continues to WOW us!!!!

During his Physical Therapy appointment he did get really distracted. As soon as he saw the little dirt devil he was in vacuuming heaven and wanted nothing to do with any other toy.

My boy loves to Vacuum. His a little obsessed. He even makes his own sound effects when vacuuming. It is really cute. I have a video I will try and post soon.

At home Owain loves to vacuum too. Even though he doesn't have a fancy dirt devil we improvised by letting him vacuum with the hose to our vacuum. He loves it!

The Beach!

by Amber

Were going to the beach.

Were gonna play in the sand.

Were going to listen to the waves of the Ocean roar.

Were going to find our very first sand dollar!
and try a little taste...