Our family's journey through life

After 4 hours at OHSU, we got our Ultrasound and CT scan. The CT scan is pretty amazing. I would encourage anyone that ever gets a CT scan to ask for the images to be put on a disc. Since the images require a special viewer, they bundle it on a CD for you. Then you can create videos/pictures of the 3d image and apply transparent colors to specific data types(ie Muscle tissue, bone structures, air bubbles and more if your computer can handle it or may require XP pro) So while playing around with Owain's CT scan data, I compiled a few video clips of his internals. I am not a Doctor, Surgeon, Radiologist, or trained in the medical field what so ever, but from my exploration in Owain's body I found a couple things that made me *gulp. I am not saying that Owain will definitely need surgery, but from what I pulled from the data, it looks much more likely(to someone untrained in the medical field). Again we are waiting official word from our Surgeon, Dr.Zigman. We should know by tomorrow.

here are the vids(don't be too concerned since I do not have the credentials to make a diagnosis):

#1(shows a slice the questionable area of his left lung)
#2(same section as #1 w/ different transparency preset)
#3(same section as #1/2 w/ different transparency preset I belive the little streak is the patch)

The little box in the lower left is a position reference
L=Left
R=Right
A=Anterior(front)
P=Posterior(back)
S= Superior(top)

I just spoke with Eric they weren't able to see anything on the ultra sound so they ordered a CT scan. Now him and Owain are waiting for our insurance company to approve the CT scan. Their just hanging out in the waiting room. I don't know what this means? Is it a good sign that they couldn't really see anything?Hopefully we will get answers soon!

I am at home with Cian (Owian's best buddy). I am always bummed when I am unable to go to Owain's appointment but I need to bring in some money.Especially if Owain does end up having another surgery and hospital stay. You know I will be their 24/7 if that happens. I am praying that doesn't happen.

Please keep our little warrior in your prayers!

Thank You

Today Owain has his appointment with the Ultra sound technician. Hopefully they with be able to get a good look at his diaphragm and we will have some answer really soon.

As soon as we know anything new we will let every one know.

Thanks for praying for our little man!

Well we didn't get a call from OHSU yesterday to make an appointment for Owain's ulta sound.
So we are going to call his Surgeon and hopefully get an appointment soon! I am tired of this waiting game! We need to get this ball rolling!

We are on our way to meet Owain's Grandma P and Great Uncle Rusty for breakfast.After breakfast hopefully we will have an appointment lined up.

I will keep every one posted as soon as we know anything. On the up side Owain seem to be doing great. He is happy and full of poop! That is a really good thing that means his bowl is working! Woohoo!

Have a great day!

Great Grandma Judy I hope you have a fantastic birthday. I made you a very special birthday card. I painted it all by myself! Well mommy and daddy helped a little mostly with the clean up.Look at me I am an artist!
Great Grandma I hope you like it! It's my first finger painting just for you!
That was fun! Lets make another one!

Great Grandma if you are reading this and your wondering why you haven't received my master piece in the mail yet. Thats because mommy is in charge of getting it to the post office and we all know how mommy can be?

Happy Birthday!
Love,
Owain

We have had a pretty good weekend considering we are on pins and needles waiting to find out if Owain is going to have yet another surgery.I am anxious for Monday so we can set an appointment for his ultra sound.I want answers and I want them now! I never have been a very patient person especially in situations like this.I am hoping that we will be able to get Owian in tomorrow. I am afraid if he has re herniated and we wait any longer then we might have to worry about him having a bowl obstruction. He hasn't been showing any signs of a bowl obstruction. Which is a great! He has been passing gas,normal bowl movements,no vomiting. Other than a little cough from his cold he has been his happy self.

To keep our minds off of everything we have been enjoying every minute we have with our little man. Yesterday we ran some errands and later in the evening Owain's Grandpa P came over to baby sit Owian while we went out to dinner with my best friend Erin (Owain's god mother).I was a little nervous to leave Owain under the circumstances but I new he would be in good hands with his Grandpa and it was only for a few hours. Owain had a great time playing with Grandpa and staying up past his bed time.I am so thankful that Owian has so many wonderful grandparents who love him.

Today we have just been having a nice relaxing day at home as a family. Owian made something very special for his Great Grandma Judy's birthday which is tomorrow. It is top secret I can't show you until tomorrow but I will tell you after his project he needed a bath!

Thank you to everyone you has given us support and sharing your stories. It really helps knowing that we are not alone and if Owain has re herniated it is not the end of the world just another bump along the ride that I know our little warrior can handle.He is our little fighter and if he can beat CDH once, he sure as heck can do it again!

Back in march when our little warrior was six weeks old and out of the woods we were finally able to bring our baby boy home and be a family. I was so excited! Their were times during his fight against CDH that I was terrified that we would never have this day. I was on cloud nine our baby boy is going home and he is healthy. Since that day my biggest fear was Owian re herniate. I new since he was missing 90% of his left diaphragm that he could very well reherniate. Now my biggest fear might be come a reality. Yesterday after Owain's xray we took a look at them with his surgeon Dr.Zigman. I immediately new something was wrong. I am not an expert but I have seen enough of my son's xray to tell that something was wrong. Dr.Zigman confirmed it when he left the room with the xray to compare to his last xray taken five months ago.He never leaves the room with the xray at any of our other appointments. After a few minutes Dr.Zigman came back with the xray and explained to us " It looks like maybe part of the bowl is either poking through his diaphragm or it's just pushing up on his diaphragm. " I immediately started to panic on the inside. I was trying to remain calm on the outside. I was thinking this is what I have been afraid of! I don't want my baby to have to go through another surgery,be incubated. I have seen so many other CDH babies have to go though another surgery and each time it breaks my heart and now their is a possibility that Owian will be next. I am trying really hard not to freak out here! Dr.Zigman ordered an ultra sound to get a better look. I was ready to go from his office to get the ultra sound but we have to wait until sometime next week! I hate having to wait! Being a Friday and Dr.Zigman didn't see it has being urgent he felt Owian will be okay. Now we just have to play the waiting game.The good news is Owain doesn't seem to be in any pain. He hasn't been showing any signs that he might have re herniated. He is still eating and is his happy self.

On a happy note Owian finally got to meet his god mother Aunt Erin. It was great to finally be able to introduce them. She didn't come empty handed. She brought Owain some really cool toys.That were a big hit! Thanks Aunt Erin!
Later I dressed Owain up and walked him over to his best buddies house. Aren't they cute? Our little bear and pumpkin! Happy Halloween!

As soon as I know more I will let everyone know ASAP. Please keep our little warrior in your prayers. Thank You!